TALKING ABOUT LONG COVID

Greater Manchester NHS supported by Aqua, and People’s Voice Media have been developing approaches to supporting people with Long Covid.

To help inform this work, our team have been working with people experiencing Long Covid as part of a series of Community Reporting sessions in which people have shared what it is like to live with the illness. We believe that stories are great ways of learning from one another and can be powerful ways of communicating. The stories people have shared with us has shed light on how Long Covid impacts on people’s lives and what support would help people through it.

So, what did we learn from the stories?

Some of the key insights in the stories were:

  • Compassionate care – focussing on how people are listened to, validated, treated in more human ways, showing empathy. In short, clinicians and professionals in the system need to be more human and less ‘process focussed’ 
  • It’s not one size fits all – the lists of symptoms are different for different people. People’s experiences are unique. It’s also a changing thing; there are good days and bad days – it’s a bit like snakes and ladders 
  • Emotional, psychological support is good when it happens, but inconsistent for some, hard to access, and there are long waiting times. In this respect, peer support is really important. Some people were offered it this and some were not – it felt inconsistent. Also, sometimes peer support has become ‘NHSified’ 
  • Support is fragmented – no one is treating or welcoming the whole person, each symptom is treated in isolation.

This short film summarises the key points from across a larger set of stories and concludes with some recommendations for the health and social care sector for supporting people with Long Covid.

CRITICAL THINKING AND DIGITAL LITERACY TRAINERS’ TOOLKIT – OUT NOW!

Over the past three years, we’ve been working with community and learning organisations across Europe as part of the CONCRIT project to explore critical thinking, storytelling and digital literacy in informal learning environments. As part of this work, we’ve produce a toolkit that provides a learning path to support trainers/informal educators to embed media literacies and digital skills in their training and community learning programmes.

The core modules in this toolkit are:

  • Introduction To Media Literacy and Digital Storytelling in Civic Education
  • Developing Digital Skills and Using Digital Tools
  • Identifying Specific Media Literacies and Digital Storytelling Needs in Different Communities
  • Safe and Responsible Practice

These four easy-to-use modules give accessible explanations and practical tasks to guide you through the different facets of media literacy and digital storytelling. Take a look and see how you can use the activities in your own work!

EXPERIENCES OF DEMOCRACY IN THE UK AND IRELAND – NEW FEATURE ARTICLE

With the ongoing rise of populist politics across Europe, the Russian invasion of Ukraine, and the divisions exacerbated by the COVID-19 pandemic and social media, European democracy matters more than ever. With people feeling increasingly distanced from democratic processes, the EUARENAS project responds to a major European challenge – the need to strengthen legitimacy, identification and engagement with democracy within our cities.

As part of this Horizon 2020 project, People’s Voice Media has been conducting research in the UK and Ireland – Wigan and Galway to be precise – to find out more about two case studies about how citizens can participate in local decision-making. We have written feature article over on the Community Reporter website to share with you what we learned from a small number of citizens about their experiences of the case studies. Later in the project, we will be releasing case study reports that share the insights from a range of research strands… but for now, you can read the key insights from people’s stories by clicking the button below.

CONTINUE PROJECT: PAN-EUROPEAN INSIGHT REPORT AND FILM

Over the past year People’s Voice Media has been working with a consortium of European partners on the CONTINUE Project. Co-funded by the Erasmus+ Programme of the European Union, the project has set out to gather the stories of young people across Europe, specifically relating to their experiences of the COVID-19 pandemic.

Initially, PVM trained the project partners in Community Reporter methodologies so that they (along with us) could host story gathering workshops followed by story curation sessions with marginalised young people in our respective localities in order to garner insights from their lived experience stories. These insights were collated and put together in a series of reports, one for each partner in Germany, Lithuania, Hungary, Italy, Portugal, Denmark and the UK. The individual insight reports (in English) can be downloaded here.

These reports were used as the backbone of a series of Conversation of Change events across Europe, one for each partner organisation. At these events, facilitated by the young people themselves, young people and project partners met with stakeholders, decision-makers and policy-makers to discuss the insights from the lived experience stories and begin to co-create ideas for social actions that would feed into the next stages of the project. The stories and events uncovered that there were three main areas in which European youth felt most heavily affected by the pandemic:

  1. Health and wellbeing – high levels of anxiety, poor mental health, reduction in physical health;
  2. Education and careers – disengagement with education, damaged career prospects;
  3. Social issues and inequalities – exacerbation of existing inequalities and social issues.

These three themes were discussed in-depth in the Pan-European Conversation of Change event, held online in April, at which stakeholders, decision-makers, and policy-makers working at the European level worked together to develop further insights and ideas for social actions. These insights have been used to create a pan-European insight report, which can be downloaded here, and a short film highlighting some of the lived experience stories told by the young people across the continent.

The project is now moving on to its next stages, in which the young people co-create social actions in each of the respective partner countries, while partners speak to local and European level decision-makers, policy-makers and stakeholders to develop knowledge exchange events and policy recommendations. Watch this space.

NEW HERITAGE PROJECT: HOME?

The logo for HOME? - A purple background with yellow lettering in the style of neon lights with an illustration of a house in the place of the 'o'.

We are working on a new and exciting 2 year project called Home? – a project made possible by the Heritage Fund, that focuses on the recent lived experiences of migrants in Northern England. Through Community Reporter stories and Archive Research, we will be exploring what it is and has been like to migrate to Northern England over the past 10 years.

On this project, we will be gathering 100 stories to document authentic lived experiences, looking at how people have settled in (or not) to their new homes, how migrant communities have contributed to the places they now live and much more. Through the stories and archive research we want to give a platform to the diversity of voices that make-up communities across Northern England and explore our very recent heritage – making sure it is preserved for future generations. We will also be embedding a social justice and anti-racist agenda into this work.

These stories will then be showcased in the public arena at a variety of venues such as Museums, Libraries, Schools, Colleges, Universities and we will be creating an animation to bring the key messages from the stories together, as well as a toolkit that will offer guidance in exploring migration in community and informal learning settings. 

To achieve all of this we are not working alone and have partnered up with some great folk to help us bring this vision to life. Specifically, in Northern England we are working with: 

  • Refugee Women Connect, Liverpool 
  • Global Link Development Education Centre, Lancaster
  • Leeds Asylum Seekers’ Support Network, Leeds 
  • Methodist Asylum Project (“MAP”,) Middlesbrough
  • Dragons Voice, Greater Manchester

These local partners will help connect the project and us into communities and engage different people in the heritage activities.

And on a national level we are working with NACCOM – a national network of over 140 frontline organisations and charities across the UK, working together to end destitution amongst people seeking asylum, refugees and other migrants who aren’t able to access to public funds because of their immigration status. NACCOM will be helping us to create the toolkit and tie in the issues and debates from the stories and research into national level conversations.

Stay tuned for more updates!