Friends United Together are a group of adults with learning disabilities from Swansea. Last year they became Community Reporters as they wanted to create a video to share their story about setting-up a co-operative.

This short film is a story about of how their friendship and determination helped them to overcome challenges and achieve better life choices. The film charts the Friends’ journey in setting-up a care co-op, improving their lives and being in control of the support they receive. This process and film was supported by IMPACT.

The video was co-produced by the Friends United Together Co-operative, Community Lives, Anna Sellen and People’s Voice Media, with contributions from Swansea Council and Cwmpas Coop.

People’s Voice Media recently worked with Dr. Dayo Eseonu from Lancaster University on a research project investigating racial justice and equality that saw us work with racially minoritised young people in South Manchester as part of a 3-day Community Reporting programme. Tony, our facilitator, shares his experiences of the programme…

The participants are young people (13 to 15 years old) who were attending Rekindle’s summer school in Hulme, Manchester. I was tasked with equipping the young people with Community Reporting skills to share their lived experiences about their experience of place from a racial justice and equality lens.

There was so much that resonated with me about this piece of work as it brought up my early years of experience of education and racial injustice. As a part of my preparation, I visited the school’s website and was immediately impressed with the school’s ethos and especially their strapline “The school you wish you’d attended”.

There were some challenges on the project, such as the age range of the group being slightly younger than I had expected and each day having slightly different participants (rather than the same group throughout). However, I adapted the session plan to keep the young people engaged with a variety of participative activities and I was mindful of a conversation that we had previously had at People’s Voice Media, wherein we spoke about giving ourselves the permission to be creative. Technical issues with the recording kit meant that the stories we gathered couldn’t be used as recordings due to sound quality but we were still able to get rich insights from the young people about their experiences of growing-up in the city. They developed skills in interviewing and storytelling, even if the technology failed us! 

Working on this project it was important that I created Timothy Clarke’s four stages of psychological safety in order to make it a space in which the young people could share lived experiences connected to racial equality and justice:

1. Inclusion Safety: People feel comfortable and wanted in a group.
2. Learner Safety: People feel able to ask questions, try things out and make mistakes. (The group did this in bucket loads!)
3. Contributor Safety: People feel safe enough to share their own ideas without being embarrassed.
4. Challenger Safety: People challenge other group members’ opinions including the group leader’s opinion. Fostering the culture of safety to challenge meant that young people were able to have ‘brave space conversations’ which are more meaningful than safe space conversations.

It is these pillars that enabled us to have so many insightful, challenging, productive and human conversations throughout the three days. 

Overall, the sessions were fun, there was a point when one of the young people asked me about my motivation for working with young people and I paused, looked up and another young person was trying to fit an elastic band around his head… I explained that it is moments like these that I relish working with young people.

Do you want to work in better partnership with those who receive your services?

Do you think that Coproduction is a good concept but not sure how to make it real in your work?

Do you want to listen more to people’s stories of their lived experience but not sure where  to start?

Do you want to find others who have the same values as you and learn from their work? 

Ideas Alliance together with People’s Voice Media are running a three-year-project from 2021-2024 looking at how we develop, explore and exchange knowledge of co-production across England, with funding from the National Lottery’s Community Fund.

We are looking for people from 12 organisations/ groups from (or with connections in) North East London to be involved in the project for its third year from October 2023 – July 2024. We are keen to partner with groups and organisations that are community-focused to deliver this. 

The project will include access to a Community Reporting Training programme and the Institute for Community Reporters web platform as well as co-production learning workshops, 1 to 1 coaching and an end of project community learning festival which we will co-create together.

The offer across the project is not ‘fixed’ –  we want to work with people who can co-create what support they need in relation to co-production, and what support they can offer other people. This will be a journey of learning together and supporting each other to develop a deeper understanding, and greater knowledge of co-production and its impact.

View the up to date information sheet below and express you interest in being involved via this form. 

As, we have previously shared with you, Disability Rights UK (DRUK) & People’s Voice Media have been working in partnership to record people’s lived experience narratives and insights about the COVID-19 pandemic and lockdowns. We are now ready to share the results of this work with you.

The Stories

During the project, we had the privilege to hear from people about their first-hand experiences of the pandemic. Many of these stories are difficult to hear but it is important that we listen and learn from them. We’ve create a playlist of key extracts from the some of the stories shared, that includes:

• Keymn explaining why having an understanding of the value of lived and living experience is training that healthcare professionals must have.
• Miro exploring why society has to re-think and understand disability differently.
• Amanda telling us why COVID information was not fully accessible for Deaf people and what could have been done differently.
• Andy explaining to Isaac the reasons for involving people with lived and living experiences.
• Hameed discussing both the positive and negative aspects of the pandemic.
• Baroness Brinton talking about health and social care problems that were highlighted during the pandemic.

You can listen to this playlist here.

And to listen to all of the experiences gathered relating to the pandemic, head to this page on the Community Reporter website: https://communityreporter.net/covid-conversations

The PVM process starts with individuals narrating their experiences, facts and feelings. We did this by talking to 22 people as part of the joint work with DRUK, so that the lived experiences of Deaf and Disabled people could be input to the COVID Inquiry.

The storytelling process

Isaac – the person who led this work, describes how in one part of the process, the information given by individuals seemed overwhelming and it was difficult to decide what are the key points we should communicate to the inquiry. This was because everything felt important and relevant and because the task of determining key themes seemed a limiting process.  It felt as though every point people made was important and felt like we might be trivialising the topic if we tried to distil it to a few simple ‘key points’ or ‘recommendations’.

However, the Community Reporting curation process (part of which was done with the storytellers themselves) means that meaning emerges from the stories and we are able to work with the detail and the nuance of people’s individual experiences. This doesn’t happen by magic. We listen and highlight what we think is important. We might colour code, group ideas together or count how often topics are talked about. We also consider how frequently a contributor might return to talk about a lived experience, as an indication of how strongly they feel about the issue. This is a multifaceted approached that allows us to work with both the individual stories (and highlight individual people’s voices) but also stories as a set of data.

For the COVID Inquiry work, we used dialogue interview and open questions to allow people to give their lived and living experiences using in their own words. As the work progressed, and by the time we had recorded 10 narratives, we started to ask people’s perspectives on topics that emerged in the other stories. There was definitely the need to balance the open questions against more focussed ones, because we did not want to lead the participants down a specific route, but we were aware that being able to give the COVID Inquiry team specific details would be important.

The findings

In the report we’ve included direct quotations from many of the people who shared their lived experiences. Where necessary, we’ve also offered explanations, based on the conversations and online sense making workshops we held. This is because we wanted to be clear about why particular aspects were different or difficult for Deaf and Disabled people. The key points from the report are:

• There was confusing and frightening information from national government and local authorities to Deaf and Disabled people.
• COVID both highlighted and exacerbated existing systemic problems and Inequalities (including racism, ageism and ableism) within statutory services
• Even though there is legislation, little understanding exists about Deaf and Disabled people’s needs.

The report is comprehensive and has had an emotional impact on some readers. We hope it will give people’s voices meaning so that the COVID Inquiry can make recommendations that will support Deaf and Disabled people, together with their carers. As Keymn Whervin stated in the foreword to the report: “The Inquiry must ensure that people affected by COVID have their voices heard, particularly in respect of how we co-produce health and social care”.

Democracy across Europe has experienced immense challenge, change and uncertainty in recent years (Canal 2014; European Commission & Merkel; 2019) – from the rise of populism to decreasing levels of public trust in governance institutions and processes, to the war in Ukraine. Set against the backdrop of these issues, EUARENAS has been investigating how cities and urban spaces can strengthen legitimacy, identification and engagement within the democratic public sphere. Foresight is one of the research strands present in EUARENAS. This report and visualisation are the final outputs from this foresight work and synthesises the varied research activities’ core findings.

From the work, an understanding of the current state of play of local democracy has been used to create (largely preferred) future visions for local democracies in Europe. Some common elements of these future visions are:

• Sustainable, long-term thinking
• Valuing difference and diversity
• Embracing the natural environment
• Being pro-actively inclusive and dismantling oppressive structures
• Rehumanising our cities – value-based working that centralises humanity, empathy, trust and transparency

The report proposes the following recommendations for Cities wanting to strive towards more equitable local democracies:

1. Address structural barriers to participation
2. Build relationships of trust
3. Invest in formal and civic education
4. Make decisions for the long-term

A more equitable, inclusive local democracy landscape is not too far in the distance for us to conceive it being possible. In fact, the future is now – the seeds to create it are already being planted, they just need nurturing by:

• Scaling and mainstreaming existing pilot or niche practices that are working locally – whether that beparticipatory budgeting, citizen assemblies or other smaller-scale projects – so that these become thenew ‘status quo’
• Adopting test and learn approaches to promote experimentation and on-going learning – this will enableongoing innovation and be responsive to society’s needs
• Finding ways to celebrate and connect-up the small changes that are taking place – this will help people see that progress is being made, even when it feels like things are changing too slow

To download the full report, click here.

We’ve also worked with Artist Lizzy Doe to create a visualisation of the EUARENAS City of the Future. Click here for the web version. Click here for the print-ready version. Click here for the audio description.