A Blog Post by Jacqueline Darlington – Carer, Mum, Community Equipment User

There’s a quiet power in bringing people together. Recently, I joined a brilliant knowledge exchange filled with people who get it—carers, equipment User, prescribers, commissioners—all with one shared focus: community equipment.

What stood out wasn’t shiny new gadgets. It was people. People talking about co-production, timely access, and how the smallest things—like a properly placed grab rail or the right seating—can make the biggest difference.

As a mum to Joshua, who relies on equipment every day, and as someone who uses it myself, I know equipment is about choice, control, and dignity. It’s about staying in our own homes, living gloriously ordinary lives, and not feeling like we’re doing it alone.

Someone at the event said, “It’s the peer support and solidarity that keeps me going—knowing I’m not the only one navigating this.” That stayed with me.

Sharing our lived experiences isn’t just powerful—it’s essential. It’s how we reimagine a future where people like us help shape the systems meant to support us. Manufacturers, commissioners, prescribers—listen to our stories.

What next? We’re not sure. But what we do know is: we’re coming back together. And we’ll keep raising our voices until the system hears us.

“Equipment matters because people matter.” – Isaac Samuels, 2024

Find out about Co-Production on the TLAP website linked here.

Head over to the Community Reporter Website to see the Equipment Matters Film and explore the full set of stories – including Jacqui’s!

Want to discover what Gloriously Ordinary Lives are doing in the world of support? See how they are building a movement that is working to check whether or not someone who might need some support is getting to live the life they choose and the support they get is helping and not getting in the way. Check out their site here.

See what Medequip have to say about their involvement in this work on their page.

Back in May, the EUARENAS project held its first Community of Practice (CoP) in-person session as part of a project meeting in Reggio Emilia. The CoP is made-up of folk from research, services, policy and communities across Europe and the group is interested in learning and developing their knowledge about how democracy works in local communities, and how citizens (in the broadest sense of the term – i.e., people who live in a place) and communities can be more involved in local democracy. As part of this session, we delivered an introductory activity that looked at the future of democracy in Europe – this blog shares with you some of the ideas from this session…

Democracy Now

When reflecting on what democracy feels like where they live and work, the CoP members noted points such as:

• Citizens feel removed from the political process – they perhaps don’t care or feel powerless to affect change 
• There was a sense that ‘European identity’ is being diminished 
• Growing complexity administration and bureaucracy causing blockages and disconnect 
• Truth and trust doesn’t feel valued 

A key question being posed, was is democracy really working? Are current structures really supporting the practice or principles of social equality – or are they unwittingly helping maintain inequalities? 

The future we’d like to see

Given that some of the points above point to a ‘crisis in democracy’, CoP members had some interesting ideas about how this could look very different. These ideas included:

• Citizens having more agency and involvement in democracy – moving to ‘deep democracy’, going beyond just voting and being involved in deliberation and decision-making 
• Having a ‘value-driven’ democracy 
• Local government with the competencies to support new ways of working with citizens and involving them in local democracy

Ideas for getting there

So, given that the CoP members would like to changes from the current situation, we spent some time thinking about how we might get there. Thinking and suggestions in this area were:

• Mainstreaming of existing practices such as participatory budgeting, citizen assemblies, crowdsourced law – so that these become the new ‘status quo’
• Adopting test and learn approaches as a way that experimentation can be done and actively learned from
• Find ways of celebrating and connecting up the small changes that are taking place – this will help people see that progress is being made, even when it feels like things are changing too slow

The full results of this workshop will be combined with more detailed work done with residents of different cities across Europe to produce an insight briefing focusing on how people across Europe are currently experiencing democracy and their ideas for the future.

This will be released in Autumn 2022 – watch this space!

This week, members of the PVM team have been in Palermo, along with partners from the CONTINUE Project, to deliver training on Knowledge Exchange activities and share updates on work package progress. A representative from Gorse Hill Studios – our local partner based in Stretford, Greater Manchester – also joined us, for a week of shared learning and development.

We kicked off the week by exchanging key learnings from stakeholder interviews which partners had conducted with people in their local communities. The interviews were with a range of different people including teachers, youth workers and representatives from local government and explore their thoughts on how the COVID-19 Pandemic has impacted the lives of young people. Each partner presented the key learnings from each of the interviews, then we moved on to discussing how we could share this information with other people working in the field.

As part of the training, the group exchanged ideas for activities that could be used in the knowledge exchange event to facilitate discussion – ideas ranged from the Fishbowl technique to Focus Groups, creating safe spaces and World Café. We were then provided with a template session plan which each of us will adjust to suit the needs of the groups we’ll be working with.

Partners are now fully equipped to organise and deliver their knowledge exchange events. This stage of the project will be wrapped up by the end of September. Each partner will then write up a set of local policy briefings (using the learnings from the KE events) which will be shared in the hopes of influencing change.

A further Pan-European Knowledge Exchange event is set to take place by late November, combining the learnings from the local sessions and building further understandings – this will feed into a final Pan-European Policy briefing which is set to be released in the New Year.

The TNP took place the day after the training sessions and enabled partners to update on the progress of the project and discuss future plans.

Stay up to date with project happenings on the PVM blog and be sure to follow us on social media for more frequent updates.