Back in September, PVM team members Sarah & Georgia headed to Wrocław’s Instytut Kultury for three days of project meetings, policy seminars & conference activities.

We kicked things off by revisiting different work packages and exploring the key learning that have been produced as part of the project so far. It was great to see what progress has been made by each of the partners and to hear their thoughts on the findings.

We rounded day one off with an interactive city game, exploring different areas of the town centre in search of the iconic dwarf statues.

On day three we joined project partners in hosting a conference on ‘The Radical Side of Participation’. As part of this, PVM delivered a SWOT analysis activity reflecting on the strengths, weaknesses, opportunities and threats of the City of the Future map.

You can take a look at the map for yourself below:

We also heard from scholars, researchers, activists, city representatives and citizens who led discussions on participation in it’s many forms and the unique variations which exist across our communities.

Find out more about the project over on the EAURENAS website here.

In the bustling heart of the Black Country, a transformative initiative is stirring waves of change, reshaping our interactions with healthcare systems. The partnership between People’s Voice Media and Wolverhampton Voluntary and Community Action has created the space for an inspiring endeavor: Community Reporting within the Black Country Integrated Care System.

In a world where countless stories often go unheard, Community Reporting emerges as a beacon of change. This visionary project bridges the gap between citizens and healthcare systems, capturing the everyday experiences of those accessing health services. It illuminates the intricate nuances that shape our interactions within the healthcare and care systems, enabling local people to have a voice.

On Day 1 of the workshop, seven local individuals embarked on a transformative journey. With fervent curiosity, they delved into the world of Community Reporting. Techniques such as snapshot storytelling took centre stage, showcasing diverse ways stories can be woven, captured, and shared. 

At the core of Community Reporting lies the belief that every voice holds value. This principle reverberates throughout the process, linking stories with individuals and organisations capable of driving positive change. It weaves a rich narrative tapestry, offering a real world view of lived experiences that might otherwise remain unheard.

Beyond traditional healthcare boundaries, this two-year project overflows with innovation. The Integrated Care System framework finds a potent ally in Community Reporting, identifying what works and unravelling transformational opportunities. The project promises to infuse the Black Country’s healthcare landscape with a vital wave of innovation.

As we navigate this inspiring narrative, the potential for profound change becomes evident. Community Reporting empowers individuals and communities, forging connections, and nurturing empathy. Together, as participants, storytellers, and advocates, we amplify voices. We are crafting a future where every lived experience contributes to a healthier, more inclusive society.

Join the team at People’s Voice Media and members of the Community Reporter network as we host our 2nd online catch up of 2023.

People’s Voice Media hosts 2 online catch-ups per year for the people, groups and organisations that make-up the Community Reporter network. These meetups are a great way for members to keep up-to-date with what is happening in the Community Reporter network, learn new stuff, share expertise, exchange knowledge, find out about opportunities they can get involved in, meet other members, network and much more and connect to other peers.

And if you’re not a member of the Community Reporter network… then don’t worry – you can still come along and find out more about us! Everyone is welcome and we are always looking for new members.

It’s only an hour, so grab a brew and a biscuit if you like, log on and find out what exciting stuff is happening across our network! This will be held on Zoom.

You can sign up to get involved through eventbrite (we’ve conveniently included a checkout link below) and best of all it’s free!

If you’d like a little more information about what we’ll be discussing – you can find that here.

Financially supported places

A quick heads up – we have 2 financially supported places available for this catch-up that will be allocated on a first-come, first-allocated basis. The financial support is up to a maximum of £25.00. This can be used to cover:

1. Expenses such as childcare costs etc. that you incur through attending the meet-up. To claim this, you’ll need to send us an expenses form and receipts.

2. Other support costs such as a PA to support you to attend. To claim this, you’ll need to send us an expenses form and receipt OR ask your support to invoice us directly.

3. Internet costs – These can be paid at a rate of £5.00 per hour, or if you are purchasing a online connection for this session (i.e., internet cafe etc.) then you can claim the full cost, up to £25.00 with a receipt via an expense form.

4. Contribution fee. To claim this, you’ll need to send us an invoice and be responsible for your own tax and insurance as a self-employed person.

To request a financially supported place, please indicate this on the registration form and our team will get in touch before the meet-up with further details.

Back in July, PVM hosted our 5th annual Community Reporter Network Conference at 54 St James Street in Liverpool.

The day included a series of workshops which explored community reporting and lived experience storytelling, with a focus on creating equitable futures.

We were joined by members of the community reporter network, project partners, and people from across the UK and Europe. It was great seeing so many faces, some familiar and some brand new to the movement.

The day kicked off with two workshops, one focusing on sharing the findings of the HOME? Project and the other providing an introduction to Community Reporting (the storytelling technique we use here at PVM).

After a short morning break we got stuck into exploring the finding of the EUARENAS Project , sharing the recently published city of the future map. The map lays out a vision of a future city where participatory democracy has been able to thrive – you can view the map and find out more by following the hyperlink above.

Disability Rights UK showcased the findings from a storytelling project looking at the impact of the COVID-19 Pandemic on Deaf and Disabled People. They invited people in the space to think about our own role in restorative practice as society recovers from the pandemic. It was an important and thought provoking session and a huge thank you goes out to the staff and storytellers for their time, energy and commitment to the project.

After lunch we delved into the future of data collection and impact measurement – exploring how people’s voices can play an integral role in measuring change in communities. PVM and NOI Project project partners shared techniques from their recently published toolkit (the culmination of the 3 year project) demonstrating how storytelling can be used as a tool for measuring change.

Our friends at Groundswell captivated the room with an interactive workshop exploring the complexities of advocating for your rights while experiencing homelessness. Through providing real world scenarios, they created an environment in which you could place yourself in the position of someone experiencing homelessness trying to access support for your health. An eye opening session which highlighted the challenges and systems people are forced to navigate when placed in a vulnerable positions.

We’re now in the process of gathering feedback on the conference. The team are currently conducting reflective interviews with the people who attended. These experiences will feed into creating next years conference, along with the thoughts and suggestions collected during the ‘Future of Community Reporting’ workshop which ended the days activities.

We can’t wait to hear about how people found the day and feel excited about getting started with the planning of next year’s conference.

Keep your eyes peeled on our social media pages and the blog, as we’ll be announcing updates on the next CR catch up which is taking place later this year.

Until then, that’s a wrap from us!

The  report to the COVID Inquiry has now been completed. It has been sent to the COVID Inquiry team and you can access the report here. Below you have a summary of some of the key points and links to the conversations that PVM had with people, to give you a preview of what the report includes. 

Links to extracts from 6 of the 22 participants

Keymn explains why having an understanding of the value of lived and living experience is training that healthcare professionals must have.

Miro explains why society has to re-think and understand disability differently.

Amanda tells us why COVID information was not fully accessible for Deaf people and what could have been done differently. 

Andy explains to Isaac the reasons for involving people with lived and living experiences.

Hameed discusses both the positive and negative aspects of the pandemic.

Baroness Brinton talks about health and social care problems that were highlighted during the pandemic.

Links to full conversations with all participants

The PVM process starts with individuals narrating their experiences, facts and feelings. We did this by talking to 22 people as part of the joint work with DRUK, so that the lived experiences of Deaf and Disabled people could be input to the COVID Inquiry.

There was one point in the process, where the information given by individuals seemed overwhelming. This was partly because everything felt important and relevant, but also because the task of determining key themes seemed a difficult or limiting process.  For example, when it felt as though every point people made was important, it then seemed like we might be trivialising the topic if we tried to distil it to a few main aspects.

However, the PVM process means that meaning emerges, although this doesn’t happen by magic.  We listen and highlight what we think is important. We might colour code, group together or count how often topics are talked about. We also consider how frequently a contributor might return to talk about a lived experience, as an indication of how strongly they feel about the issue.

For the COVID Inquiry work, we began with some open questions to allow people to give their lived and living experiences in a broad way and in their own words. As the work progressed, and by the time we had recorded 10 narratives, we were able to include some more focussed questions, e.g. Other people have said _____, did you find this was the same for you or what was your experience of this? There was definitely the need to balance the open questions against more focussed ones, because we did not want to lead the participants down a specific route, but we were aware that being able to give the COVID Inquiry team specific details would be important.

In the report we’ve included direct quotations from many of the people who shared their lived experiences. Where necessary, we’ve also offered explanations, based on the conversations and online sense making workshops we held. This is because we wanted to clarify for the Inquiry why particular aspects were different or difficult for Deaf and Disabled people. The key points from the report are:

·  There was confusing and frightening information from national government and local authorities to Deaf and Disabled people.

·  COVID both highlighted and exacerbated existing systemic problems and Inequalities (including racism, ageism and ableism) within statutory services

·  Even though there is legislation, little understanding exists about Deaf and Disabled people’s needs.The report is comprehensive and has had an emotional impact on some readers. We hope it will give people’s voices meaning so that the COVID Inquiry can make recommendations that will support Deaf and Disabled people, together with their carers. As Keymn Whervin stated in the foreword to the report: “The Inquiry must ensure that people affected by COVID have their voices heard, particularly in respect of how we co-produce health and social care”.

Isaac Samuels