PATIENT VOICES – HOW COMMUNITY REPORTING IS TRANSFORMING CANCER CARE ACCESS

A group of trainees on the project sat discussing a topic.

From May to October 2024, we partnered with Macmillan Cancer Support and NHS Herefordshire and Worcestershire ICB to train health workers and volunteers in Community Reporting. The aim was to improve access to cancer care services, particularly for South Asian and Roma/Traveller communities.

At the final session, we explored key themes from the stories collected. The insights were clear:

  • Better communication is needed, using multiple languages and accessible formats.
  • Misinformation about cancer must be addressed to build trust and awareness.

Though the training has ended, the work continues. Macmillan and NHS Herefordshire and Worcestershire ICB will implement these learnings by:

  • Establishing Community Champion Advocate schemes.
  • Embedding Community Reporting into future engagement.

One participant summed up the impact perfectly:
“I’ve learned to zip this (pointing to her mouth) and open these (pointing to her ears).”

This project is a step forward in embedding lived experience into service development. By training professionals to listen, share, and act on real patient experiences, we are driving social change in cancer care access. With Macmillan and NHS ICB committed to using Community Reporting long-term, this is just the beginning of a patient-led approach to service improvement.

PUTTING COMMUNITY VOICES AT THE HEART OF HEALTHCARE IN THE BLACK COUNTRY

An image from one of the Community Reporter workshops. People sat a a table doing an activity.

Last summer, People’s Voice Media partnered with Black Country Integrated Care System (ICS), the VCSE network, and Wolverhampton Voluntary and Community Action (WCVA) to launch the REND Project. Over 18 months, we trained 51 Community Reporters and gathered 38 powerful stories exploring healthcare access across the Black Country.

The project aimed to:

  • Build capacity within the VCSE sector to support research and engagement.
  • Capture qualitative insights into people’s lived experiences of healthcare.
  • Develop a community-led intelligence library to inform decision-making.

Through Community Reporting, we uncovered key challenges that needed addressing, including:

  • Improving communication and training for healthcare staff, particularly around cultural competence and accessibility.
  • Addressing digital inequities to ensure fairer access to online healthcare services.
  • Embedding person-centred approaches that actively listen to and act on community feedback.

These findings were shared at a workshop, where local people and decision-makers came together to explore practical solutions. The stories will now inform ongoing improvements within Black Country ICS, ensuring that community voices remain central to service design.

This project is a step towards making healthcare more accessible, inclusive, and responsive to the people it serves. We were privileged to hear these stories—and even more excited to see how they drive real change.

EXPERIENCES OF SERVICES IN HALTON

People’s Voice Media and Think Local Act Personal (TLAP), in partnership with Halton Borough Council, launched a Community Reporting project to gather stories from people with learning disabilities and Autistic individuals in Halton. The project aimed to explore how these individuals experience local services, highlighting what works, what doesn’t, and what can be improved. By listening to their lived experiences, the initiative sought to understand the elements that contribute to a meaningful life and identify ways local services can better support people. 

Central to the project was a commitment to accessibility and inclusivity. People’s Voice Media was supported by members of the National Co-production Advisory Group (NCAG) to facilitated storytelling sessions focusing on people’s experience of services. Over several months, we gathered stories from a range of people and ran some online workshops to explore the key insights in the stories with the storytellers. At these sessions we developed some recommendations based on the lived experiences gathered and explore how this learning could support the implementation of the One Halton Co-Production Charter. 

The results of this work can be viewed in this short video:

AMPLIFYING GLOBAL MAJORITY VOICES THROUGH STORYTELLING

Two people from global majority communities speaking at the Community Reporter conference 2023.

This Black History Month, we’re excited to announce that People’s Voice Media has received funding from the National Lottery Community Fund to launch an 18-month Global Majority Community Reporter project starting in November 2024.

Building on our existing work, this project will train, mentor, and support Global Majority Community Reporters, ensuring that lived experience storytelling plays a central role in racial justice and social change. By strengthening our network, we aim to make storytelling an inclusive and transformative movement.

The project will:

  • Equip Global Majority individuals with skills in co-production and social change leadership.
  • Foster a peer support network across England for those working in these spaces.
  • Embed anti-racist practice within the Community Reporter network, creating safe spaces for people to share their experiences.

Led by Isaac Samuels, this initiative builds on previous work with the Co-Production Collective, turning lived experiences into real-world action. We’ll be sharing more soon on how to get involved— stay tuned as we work to ensure Global Majority voices are at the heart of co-production and storytelling for change!

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ADULT SOCIAL CARE APPG COMMUNITY REPORTER TRAINING

Late last year the Adult Social Care All Party Political Group came together to take part in some Community Reporter Training.

Over the course of the online sessions, people developed a core understanding of Community Reporting techniques including the basics of snapshot stories and dialogue interviews, responsible storytelling considerations and usage of the Community Reporter website.

The focus of the training was to support the group to gather stories of peoples lived experiences of adult social care. These stories will shine a light on voices from within the community of people receiving support from adult social care, that have otherwise gone unheard, in an attempt to create positive change within the sector. Through sharing personal experiences of what works and what doesn’t with people in positions of power, we hope to influence a progressive shift in service provision. Since then PVM have delivered follow up workshops to train more Community Reporters and help the group with action planning for the future.

Thank you to everyone who came along to the sessions and shared their experiences, we’re excited to see you continue to use Community Reporting in the future and look forward to hearing even more stories that emerge from this work.